ENTWINE Prospective Cohort Study in Informal Care (ENTWINE-iCohort)
Research type
Research Study
Full title
Challenges, motivations and willingness to provide care in informal caregiving across Europe: ENTWINE Prospective Cohort Study (ENTWINE-iCohort)
IRAS ID
275016
Contact name
Val Morrison
Contact email
Duration of Study in the UK
1 years, 6 months, 30 days
Research summary
ENTWINE iCohort is an intensive longitudinal cohort study designed to collect data on the various determinants and outcomes of willingness and motivations to provide care in the five countries (UK, Israel, Italy, Netherlands and Sweden) represented in the ENTWINE network and up to five other EU countries, with the possibility of extending this to further countries drawing on other existing collaborations the team members have, and possibly with the assistance of Partner EUROCARERs. The study is addressing caregivers of those affected by a chronic somatic condition, including those that are to varying degrees stable, fluctuating or degenerative, such as Parkinson’s Disease, stroke, heart attack, COPD, Multiple Sclerosis, dementia and cancers.
Within this ENTWINE-iCohort Study, five Early Stage Researchers will work together to attain shared and unique objectives focused around willingness and motivations to provide care. In brief these include the examination of:
- prevalence and cultural differences in willingness and motivations to provide care,
- personal and geographical barriers and facilitators of caregiving,
- diversity in experiences of caregiver-care recipient dyads,
- differences across countries of formal versus informal caregiving and personal preferences,
- opportunities and challenges of household-based migrant care work to support informal caregiving.The ENTWINE iCohort study shall combine:
1. Longitudinal data collection (Baseline + 6 months follow-up survey) using an electronic or hard-copy survey tool collated from the above 5 project objectives, with data collected from Informal Caregivers
2. Longitudinal data collection (Baseline + 6 months follow-up survey) using an electronic or hard-copy survey tool with an identified sample of Care Recipients for analysis. This will employ a subset of the questions employed with Caregivers, specifically focusing on dyadic coping and communications, willingness to receive care and selected outcomes.
3. An optional weekly diary study, employing intensive longitudinal methods with an identified subset of brief weekly assessments in Caregivers and Care Recipients.REC name
Wales REC 5
REC reference
20/WA/0006
Date of REC Opinion
22 Jan 2020
REC opinion
Favourable Opinion