EDCAT version 1
Research type
Research Study
Full title
Exploring the different decisions Black, Asian and Minority Ethnic women with gynaecological cancer make along their treatment journey
IRAS ID
336243
Contact name
Susanne Cruickshank
Contact email
Sponsor organisation
The Royal Marsden NHS Foundation Trust
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
The project endeavours to explore the experiences of Black, Asian and Minority Ethnic (BAME) women who decline, delay or discontinue treatment for gynaecological cancer. There is evidence to suggest that women from the BAME community have a worse outcome from gynaecological cancer compared to their caucasian counterparts. The reasons for this are complex and multifactorial. A lot of work has been done to address this, but primarily the NHS Longterm plan and NHS Core Plus 5 focuses on early diagnosis to address this problem.
There is evidence that patients within the BAME community are presenting early via their GP and not as an emergency. However, survival outcome remain poor. Clinicians are observing that patients within the BAME community are not always adhering to planned treatment with a curative intent. This project endeavours to explore why patients who are diagnosed with cancer choose not to have all or some of their standard-of-care treatment.
The project will involve interviewing women with gynaecological cancer from the BAME community who appear to have declined, delayed or interrupted their anti-cancer treatment recommended by their clinician/ MDT within a tertiary cancer hospital in London over a 6 month period. We will also interview clinicians working within gynaecology-oncology services that have treated women who appear to decline, delay or interrupt their treatment.
The interviews consist of open-ended questions to explore the experience of patients who appear to decline, delay or interrupt their treatment for gynaecological cancer and the experience of the clinicians looking after them.REC name
West of Scotland REC 3
REC reference
24/WS/0079
Date of REC Opinion
2 Jul 2024
REC opinion
Favourable Opinion