DUS ROP

  • Research type

    Research Study

  • Full title

    Drug utilisation study for Eylea (aflibercept) 40 mg/mL using the PICLEO paediatric dosing device in preterm infants with retinopathy of prematurity in the UK

  • IRAS ID

    337368

  • Contact name

    Rosie Gilbert,

  • Contact email

    rose.gilbert@bayer.com

  • Sponsor organisation

    Bayer

  • Duration of Study in the UK

    3 years, 10 months, 3 days

  • Research summary

    Retinopathy of prematurity (ROP) is a condition where the eyes of babies born very early stop developing properly, possibly causing vision problems or blindness. About 10-11% of babies are born prematurely, and ROP affects those born before 32 weeks. In Europe, the incidence varies. Most cases are mild and resolve on their own, but some may need treatment.

    In the UK, around 300 ROP patients need treatment each year. Treatments include laser and injections to the eye. Guidelines suggest using anti-VEGF agents (used to stop the growth of new abnormal blood vessels in the eye, which often leak fluid or bleed) for specific ROP zones. The Medicines and Healthcare products Regulatory Agency (MHRA) in the UK requested a study on the long-term safety of Eylea (aflibercept) 40mg/mL for treating ROP in a prefilled syringe (PFS), along with a specialized paediatric dosing device (PDD).

    This observational retrospective data study will utilise data on Eylea PFS+PDD already collected into the National Neonatal Research Database. The first phase (around 12 months) of the study will be a drug utilisation study (DUS) to assess the number of infants treated with Eylea PFS+PDD. If such numbers are sufficiently high, this will allow progression to a longer-term safety study. This approach has been agreed with the MHRA as a condition of Eylea authorisation in the UK and is also part of the EU Risk Management Plan.

    Assessing the number of infants exposed to Eylea PFS+PDD is crucial before planning a more extensive study on its long-term safety.

  • REC name

    North East - York Research Ethics Committee

  • REC reference

    24/NE/0043

  • Date of REC Opinion

    15 Feb 2024

  • REC opinion

    Favourable Opinion