(duplicate) Neurology Video Research Database
Research type
Research Database
IRAS ID
295863
Contact name
Sameer Zuberi
Contact email
Research summary
Neurology Video Research Database
REC name
North West - Haydock Research Ethics Committee
REC reference
21/NW/0056
Date of REC Opinion
4 Jun 2021
REC opinion
Further Information Favourable Opinion
Data collection arrangements
The following data is collected for all patients taking part in the service who have consented to the use of their data to be stored in the research database:
Data extracted from medical records:
- Demographics: Age, gender,
- Co-Morbidities
- First 4 characters of postcodeData obtained from vCreate service:
- Number of registered users uploading seizure videos
- Number and frequency of videos uploaded per patient
- Use of videos and expert diagnostic classification.
- Structured history data entered by the patient / family.
- Video recordingData submitted by clinicians:
- Clinician opinion of each upload episode:
- Classification of epilepsy or movement disorder - structured metadata
- Clinician action (investigation, future review, discharge)Research programme
1. The metadata on classification and the video could be used to develop artificial intelligence algorithms for diagnosis of neurological disorders including epileptic seizures and non-epileptic events. This would be of great importance for areas where there is a challenge accessing expert opinions on clinical events. Almost all adults in the world have access to smartphone technology however access to specialist neurologists is limited for 50 million people in the world with epilepsy. Developing robust diagnostic algorithms may have a major worldwide public health impact. 2. The clinical features (visual & metadata) of specific seizure types and movement disorders could be studied in order to describe them in more detail and facilitate diagnosis. 3. The video system and associated metadata could be used to study patient pathways, speed of access to specialist opinions and time from referral to diagnosis. 4. As we will record the first 4 digits of postcode in the metadata this will allow research on access to video diagnostic technology for individuals with regions with differing indices of multiple deprivation. Research promoting equitable access to care will be facilitated. This is important as there is evidence that people with epilepsy, both children with genetic epilepsy and adults are more likely to reside in areas with higher indices of multiple deprivation.
Research database title
Neurology Video Research Database
Establishment organisation
Greater Glasgow Health Board
Establishment organisation address
JB Russel House
Gartnaval Hospital
Glasgow
G12 0XH