Development of the Stroke Patient Concerns Inventory (sPCI) V1
Research type
Research Study
Full title
Development of the Stroke Patient Concerns Inventory (sPCI): Stroke Survivor and Carer Perspectives
IRAS ID
307024
Contact name
Kulsum Patel
Contact email
Sponsor organisation
University of Central Lancashire
Duration of Study in the UK
0 years, 4 months, 21 days
Research summary
Stroke survivors may experience needs or concerns after stroke, which can often go unmet. This can lead to reduced quality of life for stroke survivors and greater burden on carers. Limited clinic appointment time and communication difficulties after stroke can make it difficult for people to raise and discuss their concerns. Therefore, we need a way of enabling stroke survivors to identify and raise concerns with their healthcare staff at clinic appointments, so that they can be addressed.
We have developed a prompt list called the Stroke Patient Concerns Inventory (sPCI). This lists concerns people may experience after stroke and can be used as a prompt. Before their appointment, people can use the list to identify their concerns, which is then passed onto their healthcare team, who can then focus on those concerns during the appointment.
The sPCI was developed based on existing research on stroke survivors’ concerns and staff views. We need to make sure the sPCI is valid and acceptable so we will explore the views of stroke survivors and carers.
Stroke survivors (and their carers), who are being discharged from inpatient care at three NHS hospitals or attending follow-up appointments, will be invited to take part in two discussion groups with up to 7 people in each, or, if preferred, one interview. They will be asked to discuss and comment on the appropriateness of the concerns listed, and their views on the practical aspects of using the sPCI. These groups will all be held either in-person at the University of Central Lancashire or online, depending on COVID-19 restrictions and participant preference.
We will use the results to refine the sPCI and create a final version, which can then be evaluated in a larger study. We estimate that the study will take up to 4 months.REC name
London - West London & GTAC Research Ethics Committee
REC reference
22/PR/0544
Date of REC Opinion
18 May 2022
REC opinion
Further Information Favourable Opinion