Dementia Core Outcome Set Study
Research type
Research Study
Full title
Development of a core outcome set for people with dementia living at home in their neighbourhoods and communities
IRAS ID
169558
Contact name
Siobhan Reilly
Contact email
Duration of Study in the UK
4 years, 5 months, 28 days
Research summary
This core outcome study is one of eight work streams within the national N&D (Neighbourhoods & Dementia) Programme. The key aim of this study is to establish an agreed standardised set of outcomes as a core outcome set (COS) representing the minimum set of outcomes that should be measured and reported when evaluating health and social care interventions for people with dementia living at home in the neighbourhood and community. We will identify “outcomes” from the perspective of people with dementia and their care partners, health professionals, researchers and policy makers/commissioners, as existing outcome measures may not include outcomes that are important and meaningful to people with dementia, whose perspectives are often not represented in current studies. A search of the Core Outcome Measures in Effectiveness Trials (COMET) database indicated no core outcome set is available for use in health and social interventions targeting at people with dementia living at home in their neighbourhoods and communities.
The two research questions are:
1) Which outcomes should be measured from the perspective of people with dementia living at homes, care partners, health professionals, researchers and policy makers/commissioners?
2) How should such outcomes be measured?To address these research questions, the following objectives are proposed:
1. To identify a list of outcomes for health and social care interventions from the perspectives of people with dementia living at homes, care partners, healthcare professionals, researchers, and policy makers/commissioners.
2. To identify outcomes reported in existing intervention studies.
3. To use the Delphi method to reach consensus amongst people with dementia, care partners, health care professionals, researchers and policy makers on potential outcomes identified by key stakeholders and reported in existing neighbourhood and community-based intervention studies.
4. To assess the properties of agreed outcomes included in the core outcome set.
5. To assess the preference and priorities of stakeholders for the dementia core outcome identified.REC name
Wales REC 5
REC reference
15/WA/0260
Date of REC Opinion
17 Jul 2015
REC opinion
Favourable Opinion