Decision making in elective clitoral reduction surgery Version 1.0

  • Research type

    Research Study

  • Full title

    Elective clitoral surgery for adolescent and adult women diagnosed with complex congenital anomalies: improving knowledge about decision making processes

  • IRAS ID

    144325

  • Contact name

    Sarah Creighton

  • Contact email

    sarah.creighton@homerton.nhs.uk

  • Sponsor organisation

    University College London Hospital NHS Foundation Trust

  • Research summary

    Atypical or differences in sex development (DSD) are rare genetic conditions affecting the development of the sex and reproductive organs. Cliteromegally (enlarged clitoris) may be a feature of some differences in sex development (DSD). Traditionally, surgery has been done to reduce the size of the clitoris and create a more feminine appearance of the genitals. However, clitoral surgery can impair sensitivity and sexual function in adulthood. As a result, a recent consensus statement recommends a more cautious approach to medically non-essential genital surgery, including clitoral reduction. Despite concerns about the detrimental impact of clitoral surgery on sexual sensitivity, when given the choice, the majority of adolescent girls in our clinic choose to undergo surgery. The factors that may influence an adolescent’s decision whether to proceed with clitoral surgery remain unexplored. We aim to ascertain patients’ understanding of normal clitoral anatomy, cliteromegally, and the implications of surgery. We will also evaluate the symptoms and psychological concerns related to cliteromegally which may lead them to seek surgery. Additionally, in those who elect clitoral surgery, satisfaction will be assessed.

  • REC name

    London - Stanmore Research Ethics Committee

  • REC reference

    14/LO/0540

  • Date of REC Opinion

    19 May 2014

  • REC opinion

    Further Information Favourable Opinion