Data foundations in prosthetic Rehabilitation
Research type
Research Study
Full title
Patient and stakeholder perspectives on routine health data collection, use and sharing: Foundations for data driven improvements in prosthetic care.
IRAS ID
327205
Contact name
Chantel Ostler
Contact email
Sponsor organisation
University of Southampton
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Research Aim(s)
The NHS collects information, or data, every day as people come into contact with services, such as prosthetic rehabilitation. We call this healthcare data. This project tries to understand how to use healthcare data to improve recovery after people lose a limb, by working talking to patients, clinicians and wider stakeholders about their thoughts.Research Background
As more people suffer with diabetes, more people in the UK are having limbs amputated. These people then have rehab with a prosthesis, but recovery is not always as good as they would like. Healthcare data could tell us why this happens and what can be done about it. However, more data hasn’t always made things better for patients.Researchers say this is because patients are not involved, and can’t use the data themselves. NHS prosthetic services don’t share their data, and we don’t know what is needed to make sure future projects help patients.Design and methods
We will interview patients, clinicians and other people involved in prosthetic care (stakeholders) to find out how and why healthcare data is collected now, and what might make data collection easier or harder. We will also talk to people about how data could be pooled together across the country.Patient and public involvement
Patients and healthcare workers have helped us put the project together. These people have been invited to join an advisory group to help us carry out the work.Dissemination
We will write reports about the project for academic journals and conferences, but also look for interesting ways to share the findings with patients, clinicians and others involved in prosthetic rehabilitation. Our patient group will help with all of this work to make sure it useful for patients.REC name
London - Camden & Kings Cross Research Ethics Committee
REC reference
24/PR/0458
Date of REC Opinion
24 Apr 2024
REC opinion
Favourable Opinion