Daslne: database of children with ASD living in the North East

• Research type

  Research Database

• IRAS ID

  172598

• Research summary

  Daslne: database of children with autism spectrum disorder living in North East England

• REC name

  East Midlands - Derby Research Ethics Committee

• REC reference

  15/EM/0158

• Date of REC Opinion

  17 Aug 2015

• REC opinion

  Further Information Favourable Opinion

• Data collection arrangements

  Data are collected from parents of children with autism spectrum disorder, and with their permission from a professional who knows the child. Following informed consent being signed, parents are sent a questionnaire to complete about the child, asking about core information such as the type of diagnosis, any other disorders, language level, emotional and behavioural problems, type of school attended, any siblings with ASD. The data can also be entered directly online by parents. Data are stored on a secure Newcastle University server.

• Research programme

  The database provides a basic set of data about children with autism spectrum disorder, which can be analysed in itself. However, the data chosen to be collected are primarily to allow appropriate filtering of requests from researchers in the field of autism for support with recruitment to research studies. The Daslne database is closely allied with ASD-UK, the national family research database. Additionally it operates in collaboration with local professionals to maximise coverage, so as to ensure representativeness of the children registered.

• Research database title

  Daslne: database of children with autism spectrum disorder living in North East England

• Establishment organisation

  Newcastle University

• Establishment organisation address

  Faculty of Medical Sciences, 3rd floor, Leech Building, University of Newcastle, Framlington Place

  Newcastle upon Tyne

  NE2 4HH