Creating pathways for future digital care
Research type
Research Study
Full title
Digital Technology in Palliative Care: Co-Designing a Framework for Creating Future Digital Technology in Palliative Care.
IRAS ID
323134
Contact name
Gavin Sim
Contact email
Sponsor organisation
University of Central Lancashire
Duration of Study in the UK
2 years, 6 months, 7 days
Research summary
The aim of the project is to answer the following question ‘Can a co-design framework be synthesised to construct future digital technology in palliative care?’. This will be achieved by conducting four studies, investigating, and understanding the stakeholders, such as patients, their families, hospice trustees, Palliative Care Practitioners, and their use of digital technology, identifying barriers and diverse insights, to then bring together different people to design what future technology may look like. This will be achieved by initially conducting two focus groups which will form study one, to identify the barriers and motivation in the use of digital technology in a timeline of prior, during and post COVID-19 with in house hospice staff and community staff. Study two will consist of interviews with palliative care patients, their families and stakeholders of St Catherine's Hospice to identify the motivations and barriers of digital technology used. The palliative care patients that will be investigated are those who currently sit in the green criteria, which is the support stage (Gold Standard Framework, 2006) in the North-West Model for Life Limiting Conditions in palliative care services in North West England. Study three will be an ideation workshop to ideate and sketch what future technologies may look like. These will be revised and evaluated for study four to present to the same stakeholders, as study three as high/low fidelity prototypes for further ideation.
This study will predominantly be converging with St Catherine’s Hospice, which cares for adults aged 18 and older, in Chorley, Preston, and South Ribble. The benefits and contribution to this study will help further digital technology development for St Catherine’s Hospice and the patients and families that are cared for.
(Palliative Care Clinical Practice Summary Guidance on Consensus Approaches to Managing Palliative Care Symptoms North West Coast Clinical Network Lancashire and South Cumbria Consensus Guidance, 2021.)REC name
North West - Preston Research Ethics Committee
REC reference
23/NW/0122
Date of REC Opinion
20 Jun 2023
REC opinion
Further Information Favourable Opinion