COVID-PD [COVID-19}
Research type
Research Study
Full title
An observational study on the effect of social isolation on Parkinson’s Disease patients during UK lockdown measures in response to the COVID-19 outbreak
IRAS ID
283634
Contact name
Kallol Ray Chaudhuri
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
2 years, 0 months, 0 days
Research summary
Social isolation is one of the greatest risk factors for both morbidity and mortality in humans. The social isolation amid COVID-19 outbreak will possibly have a negative effects on vulnerable populations, such as those living with Parkinson’s disease. On the other hand, social support and promoting activities of daily living lead to improvements in medication adherence, symptoms and environmental management. Many non-motor symptoms remain under-reported to healthcare providers. This leads to the necessity of using other means of obtaining this information from them. The study will involve data collection from patient-based questionnaires. This is an observational study that can offer valuable insight into the quality of life of Parkinson’s disease patients during the COVID-19 outbreak. The phone survey/online platform offered through this study, can give us the opportunity to directly assess and investigate the effects of COVID-19 social isolation measures and subsequent loneliness as well as impact on Parkinson’s disease symptoms and quality of life. Phone communication and online platforms offer an opportunity to look at the ‘During Isolation’ and potentially ‘After Isolation’ time points and compare those to ‘Before Isolation” even when no face-to-face consultations can take place. The ’Before Isolation’ data has already been obtained in another study called NILS (Non-motor International Longitudinal Study). PD patients that have taken part in this previous study will be asked to optionally consent on whether they are happy for that data to also be used in comparison to the COVID-PD data.
REC name
South Central - Oxford B Research Ethics Committee
REC reference
20/SC/0253
Date of REC Opinion
29 Jun 2020
REC opinion
Further Information Favourable Opinion