Contributing clinical MRI scans to multi-centre collaboration
Research type
Research Study
Full title
Contributing clinical MRI scans to multi-centre collaboration
IRAS ID
123585
Contact name
Dame Pamela Shaw
Contact email
Research summary
When patients are diagnosed with motor neuron disease in our hospital, they will have detailed MRI scans of the brain and upper spinal cord to make sure that no other conditions could be mimicking motor neuron disease. This is a standard part of their normal clinical care. We would like to ask permission from each person to send their scans, in anonymised form, to neurologist colleagues in Europe (the NiSALS consortium) who are organising a large database of scans of patients with motor neuron disease from many different countries. The aim is to find similarities in scan appearances from this big group which could help make the diagnosis earlier, monitor disease progression, and help predict the course of the disease. In order for the protocol to be the same for all scans and across centres, it may require a few minutes longer in the scanner. In addition, we would like to send anonymised clinical data (for example, MRC power scores, type of disease onset) from the time of scan acquisition.
REC name
Yorkshire & The Humber - Sheffield Research Ethics Committee
REC reference
13/YH/0307
Date of REC Opinion
4 Sep 2013
REC opinion
Favourable Opinion