Congenital Heart Disease Intervention programme (CHIP) - III
Research type
Research Study
Full title
The Congenital Heart Disease Intervention programme (CHIP) - III - a prospective study of psychosocial and neuropsychological outcomes into early adulthood.
IRAS ID
275151
Contact name
Christopher Lockhart
Contact email
Sponsor organisation
Belfast Health and Social Care Trust
Duration of Study in the UK
1 years, 11 months, 27 days
Research summary
In 2000 - 2004 we examined medical, psychosocial and neurodevelopmental outcomes for two cohorts of children with significant congenital heart disease (then newly diagnosed infants and 4 – 5 year old pre-schoolers). At that stage we also evaluated the impact of a family focused psychological intervention to improve adjustment and well-being for the child and family living with congenital heart disease. We followed up the complete cohorts again in 2008 – 2010 in the second wave of a longitudinal study. The present study will follow up the same cohorts of 160 now young adults (aged 18 - 24 years), who attend the Adult Congenital Heart Disease service at the Royal Victoria Hospital. Consent will be requested to include information from their medical charts, together with their previous research data of psychosocial, neurodevelopmental and medical functioning as children. In this current study participants will complete standardized psychological questionnaires, a bespoke structured interview and undergo a neuropsychological assessment of current cognitive functioning (e.g. related to memory, attention, planning and sequencing and reasoning). We aim to:
1. Chart outcomes (medical, psychological, educational, occupational and social) for young adults with a history of significant congenital heart disease.
2. Examine what disease, surgical, child and family factors from infancy and childhood, either amplify risk or act as protective factors for health, well-being and adjustment in adulthood.
A secondary aim of this study will be to explore whether the participation of their parents in the original CHIP programme, previously delivered to bolster family resilience, in infancy and early childhood, has had longer term benefits for the now young adults.REC name
London - London Bridge Research Ethics Committee
REC reference
20/HRA/1336
Date of REC Opinion
24 Jun 2020
REC opinion
Further Information Favourable Opinion