Collaborative Cancer Resource – Patient Reported Experience Measure
Research type
Research Study
Full title
Developing a cancer psychosocial patient reported experience measure: A Collaborative Cancer Resource- Patient Reported Experience Measure (Co-CaRe-PREM)
IRAS ID
341790
Contact name
Research Integrity and Governance Office
Contact email
Sponsor organisation
University of Surrey
Duration of Study in the UK
0 years, 1 months, 16 days
Research summary
Cancer diagnosis, treatment and survivorship or palliative care can be psychologically demanding for patients with many reporting unmet psychosocial care needs. Meeting these needs can be stressful for clinicians and pressures from increased workloads/hybrid working due to COVID has led to higher job demands and stress. We are separately developing co-designed recommendations and resources to support staff in providing psychosocial care (IRAS ID: 324252). To support this we have adapted an existing patient reported experience measure (PREM, a type of questionnaire designed to measure patient experience) to be relevant for the outpatient cancer setting based on a review of the literature (manuscript in preparation), and feedback from staff stakeholders (local nursing, allied health professionals and medical staff).
The proposed study aims to pilot this adapted questionnaire for an initial assessment of its statistical performance and to gain feedback from patients on its acceptability and content (scope and comprehension).REC name
London - Surrey Borders Research Ethics Committee
REC reference
24/PR/0379
Date of REC Opinion
19 Apr 2024
REC opinion
Favourable Opinion