Clearing Lungs With ENaC Inhibition in Primary Ciliary Dyskinesia

  • Research type

    Research Study

  • Full title

    A Phase 2a, Randomized, Double-blind, Placebo-controlled, Incomplete Block Crossover Study to Evaluate the Safety and Efficacy of VX-371 Solution for Inhalation in Subjects with Primary Ciliary Dyskinesia

  • IRAS ID

    207336

  • Contact name

    Anita Woodring

  • Contact email

    awoodring@parion.com

  • Sponsor organisation

    Parion Sciences, Incorporated

  • Eudract number

    2015-004917-26

  • Duration of Study in the UK

    2 years, 1 months, 1 days

  • Research summary

    This study is a Phase2a, double-blind (neither the site staff not the participant would know if the participant is assigned to study medciation or its placebo equivalent), placebo-controlled study to determine the safety and efficacy of VX-371, an inhalational solution, in participants with Primary ciliary dyskinesia (PCD). Approximately 150 participants, aged 12 years or older, with a confirmed diagnosis of PCD will the randomised to one of the four treatment sequences [VX-371 in 4.2% Hypertonic Saline (HS), 4.2% HS, VX-371 in 0.17% saline (placebo) and Placebo (0.17% saline)]. Each of these sequences will compose of Treatment period 1, Washout, Treatment period 2. The study includes a screening period, treatment period and safety follow up.

    The patients with PCD have hyperconcentrated (thick) mucus, resulting in poor cough clearance. VX-371 is expected to restore hydration of the mucus, thus resulting in improved cough clearance and combining it with HS is expected to further enhance the effectiveness of cough clearance.

  • REC name

    London - Chelsea Research Ethics Committee

  • REC reference

    16/LO/1424

  • Date of REC Opinion

    24 Oct 2016

  • REC opinion

    Further Information Favourable Opinion