Challenges of Cancer and Disability Study- CoCaDS
Research type
Research Study
Full title
The Challenges of Cancer and Disability Study- CoCaDS
IRAS ID
223622
Contact name
Dikaios Sakellariou
Contact email
Sponsor organisation
Cardiff University
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
The Welsh Government’s cancer plan states that services need to be planned and delivered around the patient and their individual needs. However, there is evidence that cancer patients with pre-existing physical disabilities experience both poorer care and greater barriers to accessing care than those without a physical disability. This specific group of cancer patients may be at a disadvantage but we know little about their needs.
In this project, we aim to explore the experiences of adults with pre-existing physical disabilities, who have had the additional experience of being diagnosed with cancer. We will focus both on any challenges they may have faced and any strategies they have employed to help them overcome them. To do this, we will use a combination of individual and group interviews, both face-to-face and through other means (e.g. telephone), and we will involve people from across Wales.
The information we will collect will help us identify a priority list of needs. This list will be further explored with our project advisory groups, who will help us determine ways to raise professional and organisational awareness of needs through, for example, the development of bespoke training/ raising awareness resources, prompt tools for use in practice and summary guidance. As this project is a partnership between people affected by cancer, clinicians and academics, the exact form of the training resource will depend on the findings. We envisage the resource might include on-line or hard copy information, patient leaflets, virtual or face to face training.
REC name
Wales REC 2
REC reference
17/WA/0153
Date of REC Opinion
15 May 2017
REC opinion
Favourable Opinion