CAS MND
Research type
Research Study
Full title
Harnessing technology to support assessment and management of cough and secretion problems in people with MND: A mixed methods study to explore barriers and facilitators to support co-design of telemedicine tool
IRAS ID
331082
Contact name
Charlotte Massey
Contact email
Sponsor organisation
Sheffield Teaching Hospitals NHS Foundation Trust
Duration of Study in the UK
1 years, 1 months, 1 days
Research summary
Background:
Motor neuron disease (MND) or amyotrophic lateral sclerosis (ALS), is a progressive, neurodegenerative disease of the upper and lower motor neurons, causing weakness and wasting of muscles controlling limb movement, speech, swallowing and breathing. Death usually occurs in 2-4 years and the most common cause of death is respiratory failure. Saliva, secretion and cough problems are common in people with MND, impacting quality of life, ability to implement respiratory interventions such as non-invasive ventilation (NIV) and causing a risk of chest infections. Recent studies have highlighted the importance of managing the upper airway and lower airway in conjunction to improve outcomes however management of these issues remains challenging for many health care professionals and symptoms have a big impact on patient quality of life.Methods:
This mixed-methods study will evaluate people with MND and their caregivers who have or support the management of cough and secretion issues, to identify the barriers and facilitators. Semi structured interviews will be conducted with people with MND and their caregivers to understand their perspective. Themes from this will be analysed and support the co-design of a tool harnessing technology to support management of these issues.Results:
Each data set will be analysed separately in detail using techniques such as thematic analysis. All data sets will then be analysed together in a process of triangulation to explore the findings from each component of the study.REC name
London - Harrow Research Ethics Committee
REC reference
23/PR/1328
Date of REC Opinion
18 Dec 2023
REC opinion
Further Information Favourable Opinion