Care Home Activity Providers facilitating Public Involvement

  • Research type

    Research Study

  • Full title

    Care Home Activity Providers facilitating Public Involvement in research as meaningful activity for care home residents (CHAPPI)

  • IRAS ID

    327519

  • Contact name

    Anne Killett

  • Contact email

    a.killett@uea.ac.uk

  • Sponsor organisation

    University of East Anglia

  • Duration of Study in the UK

    1 years, 5 months, 30 days

  • Research summary

    We want to understand how care home activity providers and researchers could work with care home residents to enable them to become involved in research as members of the public and have their voices heard.

    Background
    People with “lived experience” can influence research, making it more meaningful and relevant. Public involvement in care home research has typically not included residents themselves. In an existing study activity providers ran public involvement activities about our research with their residents. Activity providers fed back to the research team, and resident insights informed our research. We want to learn more about this method of public involvement.

    Methods
    This project will use three existing funded research studies. We will observe and ask people (through interviews) about the public involvement to understand if the involvement is possible, enjoyable and influences the research.
    Different activities will be used by activity providers to enable care home residents to understand and give their
    views on the research. Activities will use words, pictures, creative activities and games, tailored to residents' needs, to explain the studies, and help the residents to use their experience to influence the research.

    We will explore the process of setting up the public involvement activities, including resources needed and costs.
    We will observe the public involvement process. We will interview care home activity providers, residents, relatives, care home staff and researchers, to ask their experiences and views about the public involvement process.

    Public involvement
    CHAPPI Public Involvement group (including care home residents), will be offered choice in how they want to be involved, including decision making, developing study materials, providing perspectives on findings, and planning dissemination activities. All Public Involvement members will be offered payment according to NIHR guidance and feedback on their input.

    Dissemination
    Our findings will inform co-produced ‘How to’ guidance about activity providers facilitating resident involvement, for activity providers and researchers, to be shared widely.

  • REC name

    North East - Newcastle & North Tyneside 2 Research Ethics Committee

  • REC reference

    23/NE/0141

  • Date of REC Opinion

    25 Aug 2023

  • REC opinion

    Further Information Favourable Opinion