CAPPD
Research type
Research Study
Full title
Communication Aspects of Personalised Care Planning in Dementia
IRAS ID
333529
Contact name
Sarah Griffiths
Contact email
Sponsor organisation
University College London
Clinicaltrials.gov Identifier
Z6364106/2024/03/03 , Data Protection Number
Duration of Study in the UK
2 years, 11 months, 30 days
Research summary
Everyone living with dementia should have a ‘personalised care plan’ (NHS England), addressing their health and social priorities. GPs should review this yearly, through personalised conversations, finding out what matters most to people. This rarely happens. When it does, it is often not personalised. ‘Allied primary care staff’, like Social Prescribers, help people access social and community-based support. This usually happens separately to GP care-planning. If these activities joined up, health and social priorities could be better addressed together, and include carer needs. However, allied primary care staff lack training in having personalised conversations with people living with dementia.
Aim:
Improve personalised dementia care planning conversations
Objectives:
i. Find out how staff can best work together
ii. Identify training needs for the allied primary care workforce
iii. Design a training toolkit
iv. Begin to understand challenges of using the toolkit in real practice
v. Test the toolkit
A 3-year project, in London and Devon, will involve a diverse range ofadvisors and participants, including people not typically represented in research.
Methods:
Reviewing existing evidence; interviewing people living with dementia, carers and practitioners; video recording care planning conversations to see what communication strategies work well/not well; using findings to design training resources; staff testing the resources to see how useful they are.
Outcomes:
Allied primary care staff will be supported to work alongside GPs, delivering improved personalised care. People living with dementia and carers will feel listened to. They will have their priorities identified and addressed, supporting living well with dementia and participation in life activities.REC name
Wales REC 4
REC reference
24/WA/0167
Date of REC Opinion
10 Jun 2024
REC opinion
Favourable Opinion