CALLIOPE Study

  • Research type

    Research Study

  • Full title

    CALLIOPE: Use and evaluation OF PDMONITOR® use in people WITH PARKINSON’S (PwPs).

  • IRAS ID

    292425

  • Contact name

    Kallol Chaudhuri

  • Contact email

    ray.chaudhuri@nhs.net

  • Sponsor organisation

    PD Neurotechnology Ltd

  • Duration of Study in the UK

    0 years, 9 months, 31 days

  • Research summary

    Calliope study is designed to evaluate the clinical utility of a
    recording device for Parkinson’s Disease, the PDMonitor®, by
    patients and physicians and to record any possible changes in
    patients’ QoL.
    Main objective
    To Determine the satisfaction of patients and physicians from the PDMonitor® recording device, as evaluated by patient and
    physician satisfaction questionnaires
    The study consists of four
    on site visits and two periods of three months PDMonitor® Recording sessions
    I. Visit 0 (Screening) with Informed Consent and Eligibility Assessment. Data regarding their clinical status without using
    the device will be collected as part of clinical practice
    II. Visit 1 (Enrollment) with clinical evaluation, main patient questionnaires, patient training to the PDMonitor® and
    allocation of the participant ID number, providing device to the patient for home use.
    III. Visit 2 (3 months FU). A 3-month follow-up visit where physicians have access and evaluate the PDMonitor ® reports.
    PDQ-39 and clinical impression questionnaires. Physicians are free to perform any medication or treatment changes.
    IV. Visit 3 (6month FU/EOS). A 6-month follow-up visit where changes in patient quality of life and motor status as well
    as adherence to PDMonitor use are evaluated.
    The target number of patients is : 6-10 patients/site to be enrolled
    INCLUSION CRITERIA
    ▪Diagnosed with PD
    ▪Age 18-90
    ▪Motor fluctuations
    ▪≥ 2 Hours OFF time and/or LID
    ▪Willing and able to sign Inform Consent.
    EXCLUSION CRITERIA
    ▪ Inability to communicate independently, with or without supportive communication tools.
    Patients who have caregiver/family could be enrolled in the study.
    ▪ Unable or unwilling to commit to study procedures.
    ▪ Coexisting Idiopathic Tremor or tremor of any other cause except PD.
    ▪ Coexisting diagnosis of vascular parkinsonism.
    ▪ Coexisting paresis of any limb as a result of vascular disease or any other cause.
    ▪ Coexisting severe psychiatric disease.
    ▪ Any other severe comorbidities that could impair patients’ gait more than Parkinson’sDisease. More info is provided in protocol.

  • REC name

    Yorkshire & The Humber - South Yorkshire Research Ethics Committee

  • REC reference

    21/YH/0211

  • Date of REC Opinion

    12 Oct 2021

  • REC opinion

    Further Information Favourable Opinion