Cadence Registry_(Protocol #:GBL-CAD-19-11164)_(Study #:0085/0470).

  • Research type

    Research Study

  • Full title

    CADENCE Registry - Cold Agglutinin Disease Real World Evidence Registry

  • IRAS ID

    277297

  • Contact name

    Jun Su

  • Contact email

    jun.su@bioverativ.com

  • Sponsor organisation

    Sanofi US Services Inc

  • Duration of Study in the UK

    5 years, 0 months, 1 days

  • Research summary

    Cold agglutinin disease (CAD) is a rare type of disease, and information on this medical condition is currently very limited. The purpose of this survey-type study is to collect data so that the following can be better understood: how the disease progresses, complications, treatment impact, and patient experiences. The study also aims to gain an understanding of how CAD initially develops, and also help to raise awareness of this disease and its treatment.

  • REC name

    North East - Tyne & Wear South Research Ethics Committee

  • REC reference

    20/NE/0122

  • Date of REC Opinion

    18 Jun 2020

  • REC opinion

    Further Information Favourable Opinion