BTDA v0.5

  • Research type

    Research Database

  • IRAS ID

    325215

  • Contact name

    Cameron Miller

  • Contact email

    Cameron.Miller@thebraintumourcharity.org

  • Research summary

    Brain Tumour Data Accelerator

  • REC name

    West of Scotland REC 4

  • REC reference

    23/WS/0077

  • Date of REC Opinion

    12 May 2023

  • REC opinion

    Favourable Opinion

  • Data collection arrangements

    We will collect linked data on adult patients with primary brain tumours. This will consist of pseudonymised data on demographics, imaging, pathology, treatment and outcomes. This will be stored in a secure computing environment, where researchers will then be able to access it.

  • Research programme

    The data will be used to support a wide range of work to help understand the causes, and effects of primary brain tumours. For example, we may look at differences in imaging between different types of tumours, or how genetic differences between tumours might change their response to treatment.

  • Research database title

    Brain Tumour Data Accelerator

  • Establishment organisation

    The Brain Tumour Charity

  • Establishment organisation address

    Fleet 27, Rye Close, Fleet,

    Hampshire

    GU51 2UH