Bereavement and Learning Disabilities: A grounded theory approach
Research type
Research Study
Full title
An Exploration of the Impact of Bereavement and Grief, Explained by those with a Learning Disability – A Grounded Theory Approach
IRAS ID
338300
Contact name
Debbie Harrop
Contact email
Sponsor organisation
Teesside University
Clinicaltrials.gov Identifier
https://doi.org/10.17605/OSF.IO/ED3BP, OSF preregistration
Duration of Study in the UK
0 years, 11 months, 3 days
Research summary
This project has had previous ethics approval (274679), however the study was unable to be undertaken due to the Covid-19 pandemic.
Evidence implying people with a learning disability (PWLD) experience atypical and prolonged grief following the death of a loved one is increasing. Many factors may influence grief presentations for PWLD. Research acknowledges the intensity of grief may vary, appearing largely unrecognised within this population and often mistaken for behaviours of concern. Due to this, bereavement can be a particularly complex concept for PWLD, and is largely ignored, unrecognised or denied by those around them, who may feel unable to support the person appropriately. This study aims to use theoretical sampling and conduct individualised interviews with approximately ten people who have been diagnosed with a learning disability and have experienced a bereavement, using a qualitative Grounded Theory (GT) approach. Continuous data analysis will inform subsequent interviews until theoretical sufficiency has been reached. This qualitative approach aims to uncover some of the barriers faced by PWLD as part of their grief process and the creation of a new theoretical model informing clinical practice, detailing the support that may benefit PWLD and their families.
REC name
West of Scotland REC 3
REC reference
24/WS/0045
Date of REC Opinion
10 Jun 2024
REC opinion
Further Information Favourable Opinion