Being Me with IBD
Research type
Research Study
Full title
Being Me with IBD. Growing up and Getting on with my Life.
IRAS ID
242755
Contact name
Bernie (Mary Bernadette) Carter
Contact email
Sponsor organisation
Edge Hill University
Duration of Study in the UK
1 years, 1 months, 0 days
Research summary
Inflammatory Bowel Disease (IBD) is an incurable chronic, relapsing condition and clinical symptoms include fatigue, abdominal pain, anorexia, diarrhoea and weight loss. The symptoms and treatment associated with IBD can make young people feel isolated and make it more difficult to maintain existing friendships and generate new ones. In turn, this can impact on young people's mental health and wellbeing.
In this study we aim to explore the impact of having IBD on the social relationships of young people aged 14-25 years.
We will be guided by an advisory group of at least 4 young people with.
By using questionnaires, we aim to look at a range of factors including friendships, loneliness, anxiety, health and young people's sense of control over their lives. We aim to recruit a minimum of 120 young people from two settings (Liverpool and London) and ask them to complete the survey before/at end of a 'routine' clinic appointment or during a routine hospital attendance.
We plan to ask up to 40 young people, who completed a questionnaire to take part in interviews about their own experiences of living with IBD. We will ask them to draw a map of their friendships and to take photographs about the positive aspects of friendship and the things about IBD that threaten their friendships.
We will analyse the survey data using appropriate statistical tests and the interviews and photographs by creating themes to help us understand the young people's experiences.
We plan to produce outputs such as videos, posters or leaflets, and use blogs, webinars and social media to help spread the messages from the study to young people, parents/carers/guardians, and professionals.
REC name
North West - Liverpool Central Research Ethics Committee
REC reference
18/NW/0178
Date of REC Opinion
11 Jun 2018
REC opinion
Further Information Favourable Opinion