Assessment of Multiple Sclerosis in Routine Clinical Practice v1
Research type
Research Study
Full title
Assessment of Multiple Sclerosis in Routine Clinical Practice v1
IRAS ID
148933
Contact name
Helen Nicola Willis
Contact email
Sponsor organisation
Anglia Ruskin University
Research summary
It would appear that no studies have explored the effect of assessing quality of life in MS care management (Baumstarck, et al. 2013, pp4). The aim of this research is to assess the impact of the physical and psychological dimensions of HRQoL in patients with multiple sclerosis (MS) from their perspective in routine clinical practice using an appropriate disease specific patient-reported outcome measure,the Multiple Sclerosis Impact Scale version 2 (MSIS-29v2). My research seeks to impact positively on the care and support of people living with MS, a chronic condition which is known to adversely impact on the quality of life of both patients and their families. The key question for this research is: ‘Is there a role for the assessment of health-related quality of life in patients with multiple sclerosis in daily clinical practice?’
In the study, all consenting participants attending outpatient appointments at the neurology outpatient departments of an acute hospital trust and a community hospital will complete the MSIS-29v2. The results will be used to identify problems and guide interventions. The impact that any changes in care have had on the HRQoL in people living with multiple sclerosis with be evidenced through further assessment using the MSIS-29v2. This research will potentially lead to a service which better meets the needs of people with MS and their families.
Through assessing the physical and psychological impact of MS I am aiming to incorporate a meaningful measure into the care process. Using an MS-specific measure should enable care and support to be offered to patients which will meet their needs, expectations and priorities as the patient-perceived impact of MS will be determined. Following assessment with the HRQoL tool, possible changes to the care and support for the patient with MS will be discussed by the person conducting the outpatient appointment with that patient.
REC name
London - City & East Research Ethics Committee
REC reference
14/LO/1178
Date of REC Opinion
7 Aug 2014
REC opinion
Further Information Favourable Opinion