An Online Psychological Intervention for Adults with HAE v.1
Research type
Research Study
Full title
An Online Acceptance and Commitment Therapy Intervention for Adults with Hereditary Angioedema: A Feasibility Study
IRAS ID
339786
Contact name
Rachel McGranaghan
Contact email
Sponsor organisation
University of Surrey, Head of Assurance, RII
Duration of Study in the UK
1 years, 1 months, 2 days
Research summary
Hereditary Angioedema (HAE) is a rare and potentially life-threatening disorder characterised by recurrent episodes of severe swelling, most commonly in the limbs, face, intestinal tract and airway. From the limited research focusing on the lived experiences of adults with HAE, individuals report worries about future attacks and disruption to their life, as well as symptoms of anxiety and depression. Literature also suggests that increased levels of stress may be a contributing factor to triggers of oedema (swelling) attacks. It is well established that a variety of long-term conditions are associated with an increased risk of psychological problems. Acceptance and Commitment Therapy (ACT) is a psychological intervention that encourages the acceptance of negative thoughts, feelings and symptoms through skills such as mindfulness, cognitive defusion, and setting value-based goals, with aims to increase psychological flexibility. ACT is increasingly being utilised in the management of a wide range of long-term conditions and has been shown to improve quality of life and reduce psychological distress in these populations. To our knowledge, there is currently no psychological intervention specifically adapted for individuals living with HAE. This proposed study aims to evaluate the suitability and feasibility of a two-week online ACT intervention designed to improve psychological flexibility and values-based behaviours in adults with HAE.
REC name
West Midlands - Black Country Research Ethics Committee
REC reference
24/WM/0162
Date of REC Opinion
5 Dec 2024
REC opinion
Further Information Favourable Opinion