Advance Care Planning Among Individuals Living with COPD. Version 2.0
Research type
Research Study
Full title
Advance Care Planning Among Individuals Living with Chronic Obstructive Pulmonary Disease (COPD) in the United Kingdom: A Grounded Theory Study.
IRAS ID
311986
Contact name
Bolanle Adjeh
Contact email
Sponsor organisation
University of Huddersfield, Queensgate
Clinicaltrials.gov Identifier
not applicable, not applicable
Duration of Study in the UK
3 years, 10 months, 3 days
Research summary
The study will be exploring the perspectives of patients with mild, moderate, severe and very severe COPD, their family members and healthcare professionals on Advance Care Planning (ACP) and its process. ACP is a structured process that assists and allows patients to communicate, discuss, define and document their values, goals, and preferences for care and treatment choices in advance of any future loss of ability (Gilissen et al., 2017). According to current research (Houben et al., 2019; Meehan et al., 2020), implementing ACP is vital for patients' quality of life as it facilitates access to palliative and hospice care. Despite widespread recognition of the benefits of incorporating ACP into patients' routine and end-of-life care, data from the literature shows that these rarely occur in the routine management of non-cancerous disease conditions (COPD) as conversations tend to focus on routine symptom treatments (Jabbarian et al., 2018; Meehan et al., 2020). COPD patients with mild cognitive impairment who can comprehend the study information sufficient to give informed consent will be included.
Family members with cognitive impairment and individuals that are non-English speakers will not be included in the study. Also COPD patients with Lung cancer will not be included.
Recruitment of participants for semi-structured interviews will commence following ethical approval from both the Research Ethics and Integrity Committee (SREIC) at the University of Huddersfield and the Health Research Authority (HRA). Respiratory consultants/Respiratory nurses, General Practitioners/Practice nurses, and the chairs of Breathe-Easy/Asthma + Lung UK support groups volunteering as gatekeepers will assist in identifying and approaching participants that fit the study criteria from their respective settings (Calderdale and Huddersfield NHS Trust, Stanley Health Centre, and Breathe-Easy/Asthma+Lung UK support groups in England. The timeline for the study (including recruitment, interviews, and analysing data) is between May 2023 and April 2025.REC name
South Central - Berkshire Research Ethics Committee
REC reference
23/SC/0206
Date of REC Opinion
28 Jul 2023
REC opinion
Further Information Favourable Opinion