A Qualitative study of care priorities for older people with CKD
Research type
Research Study
Full title
A Qualitative study to explore findings from a scoping review examining care priorities and outcomes for frail older people with advanced chronic kidney disease (CKD)
IRAS ID
266653
Contact name
Helen Hurst
Contact email
Sponsor organisation
Manchester University NHS Foundation Trust
Duration of Study in the UK
0 years, 6 months, 1 days
Research summary
This study is the final stages of a scoping review being undertaken to examine care priorities and outcomes for frail older patients with advanced CKD (4-5). Although renal replacement therapy has been subject to the SONG (Standardised Outcomes in Nephrology) initiative to identify outcomes that are important to patients on different modalities; and the James Lind Alliance has identified the top 10 priorities for patients with frailty no group has examined both groups together.
The review will look in particular at research studies of older people with chronic kidney disease (CKD) classified as advanced, which means it is at level where they are either on dialysis or close to starting dialysis. We will examine what has already been reported within the medical and social literature on outcomes; it is well known that medical outcomes often only relate to survival, when this is not the only priority for older people with CKD. There is concern that we have a growing older CKD population and it is important to know how best we should support older people in the management of their condition. Particularly if they are frail and struggle to manage some of their everyday activities. There is some evidence that important outcomes such as quality of life (QoL), the burden of the treatment and fatigue are more important to patients. These topics are rarely studied leaving kidney clinicians with limited knowledge on how best to treat symptoms and whether dialysis makes things better or worse. The final stage of the scoping review will be the focus group discussions involving frail older people with CKD. The scoping review results will guide the focus group discussion so the patient or carer voice are represented. We hope to identify some important research questions and priorities that focus on what is important for patients.Summary of Results
This study was essentially a focus group discussion of the findings of a scoping review undertaken to explore the evidence published on individuals living with frailty and advanced chronic kidney disease. One of the areas of interest is how outcomes are reported and if they are relevant to this population. The focus group provided feedback on the types of tools and assessments used and provided insights to help design future studies.REC name
East Midlands - Nottingham 1 Research Ethics Committee
REC reference
20/EM/0157
Date of REC Opinion
17 Jul 2020
REC opinion
Further Information Favourable Opinion