A Patient-Reported Outcome Measure for Emergency Care of Older People

  • Research type

    Research Study

  • Full title

    Development and evaluation of face and content validity of a preliminary Patient-Reported Outcome Measure (PROM) for the emergency care of older people with frailty.

  • IRAS ID

    260098

  • Contact name

    Simon Conroy

  • Contact email

    spc3@leicester.ac.uk

  • Sponsor organisation

    University of Leicester’s Academic Department

  • Duration of Study in the UK

    1 years, 5 months, 31 days

  • Research summary

    There is a lack of evidence that describes expectations for care as reported by older patients and their carers. Older patients with frailty form a unique subgroup of the Emergency Department population; having frequent atypical presentations and complex comorbid states, their clinical needs may be poorly served by traditional fast-flowing, protocol-driven ED systems. Our systematic literature review has suggested that older peoples' perceptions around preferred healthcare outcomes and priorities for their ED attendance may be different to other groups.

    The use of a Patient-Reported Outcome Measure could help to ascertain individual perspectives and compare outcomes between care providers. Indeed, NICE advocate an individualised approach to care through acknowledgement of differences in perspectives. However, there is no validated Patient-Reported Outcome (PROM) or Experience Measure (PREM) with which to elicit the perspectives of older people with frailty.

    This study will form the initial phase of development of a novel PROM instrument to explore and objectively measure preferred outcomes for emergency care among older patients with frailty. Namely, this study will generate a conceptual framework describing the preferred outcomes for older patients with frailty and emergency care needs, and produce a preliminary PROM instrument which will undergo validation testing in future work.

  • REC name

    West Midlands - Coventry & Warwickshire Research Ethics Committee

  • REC reference

    19/WM/0098

  • Date of REC Opinion

    24 Apr 2019

  • REC opinion

    Favourable Opinion