A core measurement set for Pouch anal and vaginal fistula research

  • Research type

    Research Study

  • Full title

    Title: The development of a core measurement set for research in pouch anal and vaginal fistula (PAVF-COMS)

  • IRAS ID

    337566

  • Contact name

    Phillip Tozer

  • Contact email

    philtozer@nhs.net

  • Sponsor organisation

    London North West University Healthcare NHS Trust

  • Duration of Study in the UK

    1 years, 0 months, 1 days

  • Research summary

    We aim to develop a core measurement set (CMS) of instruments for each of the pre-defined items in the core outcome set (COS) that can be used in ileo-anal pouch fistula research. A COS is an agreed standardised set of outcomes that should be reported in research trials, increasing our ability to synthesise results from multiple studies(1). The Pouch anal and vaginal fistula COS is a list of 7 items that should be reported in clinical trials. This has been established by Reza et al. using an online Delphi consensus method involving patients, surgeons, gastroenterologists, and radiologists with expertise in pouch anal or vaginal fistulae. The CMS is a set of measurement instruments or tools including patient reported outcome measures (PROM) that should be used by researchers to qualify or quantify a patient’s response to treatment for pouch fistula(2). We aim to use an online Delphi consensus method to select an outcome measurement instrument (OMI) for each of the seven core outcomes detailed in the COS.

  • REC name

    North East - Tyne & Wear South Research Ethics Committee

  • REC reference

    24/NE/0042

  • Date of REC Opinion

    11 Mar 2024

  • REC opinion

    Further Information Favourable Opinion