The participation ladder below is based on one created by mental health activist and survivor Indigo Daya. In May 2022 we asked the people involved in our work where our way of working fits on the ladder, to provide a snapshot of how we’re currently working together and to help us think about how to do things in the future
Coproduced | Codesigned | Engaged | Consulted | Informed | Excluded |
Planning and co-hosting an event with the Academy of Medical Sciences about ‘The HRA at Ten’. | Planning how to launch the new HRA three year strategy. | Being part of the Advisory Group shaping our Think Ethics work. | Developing the new HRA three year strategy. | HRA developed its webpages to share information with the public. | Leading the HRA as a Board member. |
Collaborating to review the way HRA works with public contributors when it recruits staff. | Leading the advisory group that planned how to hear public perspectives on research ethics review | Helping to recruit HRA staff. | Contributing to the HRA Chief Executive’s annual appraisal. | Planning budgets and deciding priorities through the HRA business planning process | |
Designing a shared commitment to public involvement with other major health and social care research organisations. | Deciding HRA’s individual commitments to championing public involvement in its decision making. | Contributing to HRA event with Nuffield Council of Bioethics. | Providing feedback on a learning module for researchers about how to write plain language summaries about research | ||
Helping to shape the content and wording of new IRAS questions about public involvement in research. | Providing feedback on guidance for researchers about how to communicate study findings to research participants. | ||||
Being part of the community insight group to inform how HRA supports and values members. | Advising on website design | ||||
Taking part in workshops to prioritise ways to improve the information created for people considering taking part in research. | Providing feedback via a survey about being part of the HRA’s Public Involvement Network | ||||
Being part of the Make it Public research transparency campaign group. | |||||