The Nuffield Council on Bioethics has published a statement of aspiration on how health research can be improved by working collaboratively with young people, children and their parents which is welcomed by the Health Research Authority.
The HRA fully supports the aims and is one of a number of signatories to the statement. We believe that involving patients and, in particular, where appropriate young people and children in an advisory capacity brings benefits to clinical trials. These benefits can include improved recruitment, lower drop out and better feasibility as well as improved communications with participants and helping to make research ethical.
The full statement of aspiration can be found on the Nuffield Council on Bioethics website here.